Life with your child in the hospital

Can she survive without pacing?

January 27, Galina/Halia has tested positive for the infection where the pacemaker and battery are located.  Currently, the direction they want to go is to lower her pacemaker gradually over the next 10 days to the heart rate she puts out on her own unassisted with the pacing device.  They hope her heart expands and can support her independently since she is so young and a baby doesn’t need the higher heart rate that a young child would need. If she does fine they will then take the pacemaker and all its hardware out. They believe the infection has attached itself to the foreign object “pacemaker and its hardware” in her body easier than her body tissue.  If she needs a pacemaker after this, they will try an encapsulated pacemaker with no lead wires for the virus to attach. They’ve already reached out to Shriner’s in Memphis to design one especially for her. She will be here 2 more months irregardless.  January 31, Galina/Halia’s normal pacing is 120 and now she is pacing at 95. They have tentatively targeted her pacemaker to be removed next Thursday.  Just got a call from emergency room and Nastya is not feeling well.  She’s pregnant.  This isn’t supposed to be happening. I feel for my boys and I can’t believe I have to tell them shocking news again. I have rocked our foundation. Now my life is getting way to interesting. I’m so glad I can talk to my dad. There’s no doubt Nastya and Galina/Halia are worth it, but my 3 boys…

Comments Off on Can she survive without pacing?

I am the proud father of three amazing sons, Bradley, Hunter and Chase, All 3 were boy scouts with 2 becoming eagle scouts, two played college tennis players and third could have, and they have college degrees in Chemistry, Physics, Math and Kinesiology. They are a PA at Northwestern University in Chicago, a scientific and engineering researcher at Southern Research and a soon to be PT/PA student. The addition of a beautiful baby daughter, Halina, has joined our family tree. I am currently the Tennis Director at the Club and Spa at Fiddler's Creek in Naples, Florida.